Tuesday, February 15, 2011

The night before

After a brief postponement due to influenza b, Maggie will be going into CHOP tomorrow for her endoscopy and insertion of her ng tube.  As I get ready to put Maggie to bed, I can't help but think about the fact that this may be the last "normal" night of putting her to bed for a while.  After tomorrow, she will have a tube in her nose, going down her throat and into her stomach to receive nightly feedings of formula by a pump.  We will learn a new normal as we adjust and I am sure we will be fine, but there is a little sadness in my heart tonight.
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3 comments:

  1. K.E.'s EOS fightFebruary 15, 2011 at 6:38 PM

    HUGE HUGS
    Know that you have a huge support system
    If you have any questions text or email me
    Peace

    ReplyDelete
  2. Momma JJune 7, 2011 at 11:41 PM

    Hang in there! Our son has the ng tube and you get used to it very quickly.

    ReplyDelete
  3. Momma JJune 7, 2011 at 11:42 PM

    I just saw the date of this post. Sorry, didn't realize it has been so long. :(

    ReplyDelete

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